Tag Archive | cleft lip and palate

Cleft Power

If you read my previous blog, you know that I went to go visit five year old Ella and her family this past weekend; I had a great time. My mom got to meet Ella and her siblings, it was a great trip for all of us. The picture above is us with shirts, iron-ons made by ClefTees Designs. You can check the designs out on their Facebook page. The dolls pictured below were made by Tiny Wide Smiles – Doll Clinic, who is also on Facebook.

Ella LOVED her doll, her reaction was more than I could ask for and Melody (her doll’s name) is being loved by such a sweet little girl. I wanted to post some pictures from the trip for you all to see. Enjoy! 🙂 P.S. If you click (or double click) on on of the pictures below it will get bigger and then you can click the next arrow to see each picture after that.


Funny Moments Courtesy of My Cleft

As a kid who was born with a cleft lip and palate, there are many things I have been through. I’ve had spacers, braces, head-gear, upon other things. There are certain moments in particular that I will never forget and looking back make me laugh.

After many/most surgeries I had to use a syringe for food purposes. I remember after one surgery when I was younger, my mom and I had the idea of trying to put jello in the syringe as I couldn’t open my mouth very much. If you are reading this and you are thinking “hey, I’ve never tried that”, there’s probably a reason why. It’s NOT a good idea. The jello shot out of the syringe and onto the ceiling, needless to say we never tried that again. LOL

In fourth or fifth grade I had to get braces, along with that I ended up getting a spacer put up in the roof of my mouth. I was not pleased about the spacer and although I had just gotten it put in, I decided that I wanted a Burger King hamburger. The hamburger was not a good choice as it hurt to eat it, so I decided that if I can’t have the whole hamburger, I would have the pickles on the hamburger. One pickle eaten, two pickles eaten, three pickles….not eaten. The last pickle got stuck in my spacer!! This might not have been a big deal except I couldn’t get the pickle out and we were 45 minutes away from home. I was so upset, I began to cry. My parents tried to calm me down and after a bit I did calm down. I even made up a song, “I gotta pickle, I gotta pickle, I gotta pickle hey hey hey”, you know from the Little Rascals movie where the little boy sings “I gotta dollar, I gotta dollar, I gotta dollar hey hey hey”? What can I say I’m a silly girl.

For those that read this blog and have a cleft or a kid with a cleft, do you have any funny stories to share?