My Journey

7 Comments

7 thoughts on “My Journey

  1. You are so beautiful! This is so awesome that you are having this blog. I know it will help many people in all stages of their process. These pictures bring back many memories. My oldest son was born with a complete unilateral cleft lip and palate(hard and soft). He is 20 now. His Dr and team were amazing.

    • Brenda – Thank you for sharing. I really hope to reach many parents who might need a pick me up during the uncertain times of surgeries, or a cleft kid who is feeling down to see the outcome and that it can make a huge difference. Your son is 20, I’ve only met older girls around my age, I don’t know any males born like me. So yes, that you again for sharing.

  2. wow what a journey for you. My son is 5 1/2. Has had his lip/nose repaired, his palate partially repaired, will need the p/e tubes replaced for the 4th time. I know bone graft surgery, jaw surgery and others are down the road for him. He also has ADHD and hand tremors. Will be having an MRI for the tremors so they can rule things out. I am so glad you showed me that all the surgeries are so worth it and that you are a beautiful, courageous and strong young woman today. Thank you again. Cindy Carlin

    • Cindy – Thank you so much for sharing. You little one sounds like he has a journey ahead of him but it is so great to have supportive, caring parents to stand by. I don’t know what I would have done with out the love and support of my parents. Cleft Parents have a special place in my heart. God Bless You.

  3. I found your blog thru Pinterest, thank you for sharing your story! My little boy was born with a bilateral cleft palate. He is almost 5 months old and just had his 2nd surgery! It’s so nice to hear about your cleft journey!

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